The National Unpaid Carers Union and Forum are urging unpaid carers to have their say.
For the first time, the Department for Work and Pensions (DWP) have asked unpaid carers to input into the Independent Review of Carers Allowance. The review which is due to report its findings in Summer 2025 is asking the following questions:
1. What is the impact of Carers Allowance overpayments on carers and the people they care for?
2. How well do the DWP processes for Carers Allowance Work, are they clearly communicated and easy to follow, are the processes easy to advise people about, and how do the DWP processes make unpaid carers feel they are being treated, and can this be improved?
3. Is the approach to averaging earning clear and consistent, are expenses clearly understood, and can this be improved?
4. How does Carers Allowance work for the self employed, and can this be improved?
5. Does DWP strike the right balance between flexibility and consistency in administering Carers Allowance, and can this be improved?
6. What can best be done to support those who have accrued overpayments?
Anyone can take part in the review, we will collate your answers to the above and will provide them to the review, anyone wishing to take part can before 23:59 11th May 2025.
You can send your input to us by clicking here
Department for Work and Pensions Lets Carers "Slip Through The Cracks"
Story by Patrick Butler - Social Policy Editor
The Guardian
Ministers have announced an overhaul of the way carer’s allowance overpayments are checked in an attempt to fix the failing system which has left thousands with life-changing debts,fines and criminal records.
In a significant policy change, the Department for Work and Pensions (DWP) has been ordered to hire extra staff to investigate 100% of the carer’s allowance earnings breach alerts it receives and swiftly notify carers if they are at risk of falling into debt.
Last year, the Guardian revealed that for the last six years, the DWP has chosen to investigate just 50% of alerts on cost grounds – even though this has led to huge numbers of carers unknowingly accruing massive overpayments.
Campaigners are optimistic the move could, over time, significantly reduce the numbers of carers falling foul of the system – but warned thousands more will be unfairly hit by overpayments as huge backlogs of alerts are processed over the next few months.
Carers in England and Wales who breach carer’s allowance earnings limits of £196 a week must return the full £83.30 a week benefit payment, a “cliff edge” penalty that means going £1 a week over the limit for one year would result in the claimant being hit with a repayment demand not of £52, but £4,330.
The DWP’s dogged refusal over many years to properly check the real-time alerts of carer’s earnings it gets from HMRC and use the data in timely manner to prevent carers unwittingly running up overpayments has been a central feature of the carer’s allowance scandal, exposed in a series of Guardian articles over the past year.
Critics have accused DWP of in effect creating a lottery in which some carers are alerted to earnings breaches after a few weeks while others are allowed to accrue years of overpayments before being asked to repay large sums, in some cases as high as £20,000, causing widespread financial and emotional distress.
An independent government-commissioned review of the carer’s allowance is expected to report in the summer. The review, which will look at how the overpayment scandal came about and how to fix it, is part of what ministers have promised will be a “new settlement” for carers.
The chief executive of Carers UK, Helen Walker, welcomed the move: “When the alerts target was set at 50%, thousands of carers were missed and experienced large and damaging overpayments, in a situation that could have been largely avoided,” she said.
But she warned that until the new policy took effect, tens of thousands more carers would continue to be hit with overpayments, including an estimated 20,000 at risk when a huge backlog of paper-based alerts related to national insurance credits, which the DWP allowed to build up, is finally tackled.
“As the DWP works to clear the current backlog, the human cost of a system which needed an overhaul years ago will still continue to rise. Sadly, clearing the backlog is likely to result in a further rise in overpayments debts,” said Walker.
The government’s current position, outlined in a letter to charities last week by the social security minister, Sir Stephen Timms, indicated the handling of overpayments would be “business as usual” and there would be no pause on repayment demands, fines, or potential prosecutions for fraud.
The Liberal Democrat leader, Ed Davey, called for carer’s allowance overpayments to be written off, saying it was wrong carers continued to be punished by a system the government admitted was broken. “It is totally unacceptable that more and more carers are being caught up in this scandal, so long after it was exposed,” he said.
A DWP spokesperson said: “We are drafting in extra staff so the backlog of all under- and overpayments are investigated promptly and corrected. We will agree affordable repayment plans and, when issuing debt management notifications, signpost to independent advice services.”
Campaigners have long argued the complexity of carer’s allowance rules meant carers who worked part-time were unaware when they breached weekly earnings limits, often by only a few pounds or pence, and that the DWP should use the earnings data it had at its disposal to warn them in timely fashion so they could make adjustments.
Although the DWP promised MPs six years ago the introduction of electronic earnings alerts from HMRC would eradicate overpayments, it has repeatedly neglected to deploy enough staff to carry out the checks. Overpayments have continued to spiral, with 144,000 carers currently repaying over £250m.
The National Audit Office revealed in December that DWP policy was to investigate half of all alerts on the grounds this was the maximum it needed to process to meet its internal financial savings targets.
Timms said: “Carer’s allowance alerts have been coming in to the department, but many haven’t been processed. In future, we plan to act on all of them. This will be an important step in reducing overpayments.
“We are delivering on the change we promised when elected by drafting in extra staff. Reviewing 100% of alerts will allow us to tackle overpayments when they arise, rather than waiting until carers have built up large debts.
The National Unpaid Carers Union and Forum annual survey is out now.
The NUCUF Carers Survey 2025 is available now.
The National Unpaid Carers Union and Forum Carers Survey for 2025 is available now by clicking the following link. Survey 2025
Why do we need this information
We collect information together which we supply anonymised to the Department for Work and Pensions and HM Government to help shape the support packages offered by the local authorities.
By completing the survey you can help us to provide an accurate picture of the needs of carers. To encourage participation in the survey, we will be running the survey until Carers Rights Day on the 21st November 2025.
The National Unpaid Carers Union and Forum welcomes our new Community Partners.
Welcome to our new community partners, Harlow Council and the Harlow Food Bank.
A big welcome to our new Community partners, Harlow Foodbank in association with the Trussell Trust, and our local authority, Harlow Council.
We will be working together in our campaign for unpaid carers and their fight for financial stability, while continuing to gain support for local community organisations.
In 2024, Harlow's Food Bank assisted over 10,000 people in the community with food vouchers, and to date have assisted close to 1,000 adults and children per month.
The National Unpaid Carers Union And Forum: A Lifeline For Unpaid Carers Across The UK
Crip Life™ and NUCUF collaboration.
The National Unpaid Carers Union and Forum (NUCUF) is a groundbreaking initiative aimed at providing a strong, collective voice for unpaid carers across the UK. Founded by Leo Cleary, a passionate advocate for carers’ rights, NUCUF is dedicated to fighting for better support, recognition, and financial security for those who selflessly care for loved ones.
What is NUCUF?
NUCUF is both a trade union and a supportive online forum designed specifically for unpaid carers. It seeks to address the financial struggles, emotional toll, and systemic challenges faced by carers by offering advocacy, guidance, and a platform for collective action.
Through NUCUF, carers can connect, share experiences, and access vital resources to help them navigate their roles more effectively.
Who created NUCUF and why?
Leo Cleary, a 42-year-old carer for his elderly mother-in-law, founded NUCUF after witnessing firsthand the difficulties faced by unpaid carers. His activism began when he launched a petition against the government’s prosecution of carers who exceeded the earnings threshold for Carer’s Allowance. The petition gained over 51,000 supporters, resulting in a £45 per week increase to the earnings limit and a government review of overpayments.
Recognising that carers needed a permanent and organised voice, Leo took the next step by establishing NUCUF. His goal is to build a unified movement that can influence policies and create a lasting impact on the lives of unpaid carers nationwide.
How NUCUF will benefit unpaid carers
NUCUF is designed to provide multiple benefits to unpaid carers, including:
Advocacy and Representation: By working to gain official recognition, NUCUF will ensure that carers’ rights and concerns are heard at the highest levels of government.
Financial Support and Policy Changes: NUCUF aims to push for fair financial support, better allowances, and greater protections for carers.
Emotional and Practical Support: The online forum will serve as a safe space where carers can access advice, share experiences, and find emotional support from a community that understands their struggles.
Collaboration and Networking: NUCUF will work alongside other carers’ organisations to build a nationwide support network, ensuring that unpaid carers have access to the resources they need.
The road ahead for NUCUF
To establish NUCUF as an officially recognised union, Leo Cleary is currently in discussions with the Department for Work and Pensions (DWP) and has written to Prime Minister Keir Starmer. His determination to secure formal recognition is a crucial step in ensuring that carers’ voices are not only heard but also acted upon.
As NUCUF continues to grow, its impact is expected to reshape the landscape for unpaid carers in the UK. With increasing membership and a clear vision for the future, Leo Cleary’s initiative offers a new hope for those who dedicate their lives to caring for others. Through NUCUF, unpaid carers now have a champion fighting for their rights, recognition, and well-being.
Visit NUCUF at www.nucuf.org or email leo@nucuf.com for more information on the NUCUF.
Thank you NUCUF for partnering with Crip Life™ and featuring us on your website.
The NUCUF welcomes a new community partner.
Action for Family Carers (www.affc.org.uk)
A warm welcome to a new community partner.
Action for Family Carers is a Carers Trust Network Partner, having previously been a member of the Princess Royal Trust for Carers which merged with Crossroads nationally to form Carers Trust in 2012, of which they were a Founding Member.
"At Action for Family Carers, we’ve been supporting carers in Essex for decades. We were founded by Carers for Carers and have been making a positive difference to the lives of unpaid family Carers ever since. We’ve got 3 offices right here in Essex and over the years we have built a huge knowledge of our local communities."
To find out more about Action for Family Carers go to https://affc.org.uk/our-history/
The National Unpaid Carers Union and Forum joins forces with Crip Life™ - The online disability magazine.
Crip Life™ Magazine (www.criplife.co.uk)
The National Unpaid Carers Union and Forum has joined forces with Crip Life™ Magazine.
Crip Life™ is an online magazine that champions a community that is often marginalised and stigmatised; the disabled population, that makes up 20% of us. Our aims are to overcome disabling social barriers to allow everyone in this community to live the life they want to.
We are FREE to read anywhere in the world and, therefore, have a truly global presence. Crip Life™ shares empowering stories, advertises accessible and inclusive products and services, and gives the disabled community a voice.
Crip Life™ is the newest & freshest online disability magazine that is dismantling disabling barriers one article at a time.
Launched May 2023, founded by Emma Purcell & Joanna Baker-Rogers, two former colleagues of a previous disability publication who both have personal experiences of living with a disability.
"We are passionate about writing, campaigning & raising awareness of disability. We wanted to continue this. To do so, we created Crip Life™."
You can view the online magazine at www.criplife.co.uk.
Carer campaigns against closure of "vital centre" in Croydon
Carers Support Centre, Croydon
A carer from Croydon has started a petition preventing the closure of the Carers Support Centre in Croydon.
Jackie Arnold, started the petition in February requesting Croydon Town Council reconsider the closure which has been a "Vital Centre" to carers in Croydon for the last decade.
Following the advice of their £1million consultants, Croydon Town Council will close the doors permanently on the 14th March 2025.
Jackie said "The Croydon's Carer Centre, managed by the respected Whitgift Foundation, has not only served as a source of vital services but it also houses our beloved Carers Café, a respite room that provides us with a few hours to talk, socialize, share our stories and experiences with other carers - it's more than just a café for us."
"Time and again, the Centre has proven its worth and value. It's deeply concerning that its future hangs in the balance without any consultation with those it directly assists, all in an effort by the Croydon Council to save costs. I urge the Council to reconsider this decision."
NUCUF to host Harlow's first Covid-19 Day of Reflection Event.
The first National Covid-19 Day of Reflection to take place on March 9th, 2025.
Sunday 9th March 2025, will see regions across the UK take part in a simultaneous series of events to commemorate the loved ones we lost during the covid-19 pandemic.
The first National day of remembrance to mark the 5th anniversary of the global outbreak that claimed the lives of over 7million people worldwide and continues to affect the lives of those who survived the virus.
Currently there are still over 700million cases of the virus around the world, this day of events is to remember those we lost, support those still effected by the virus and share stories of those we wish to remember.
Harlow's event will take place at the Civic Centre, The Water Gardens, College Square, HARLOW, CM20 1WG.
Meeting from 12pm at the Civic Centre, we will hold a period of silent reflection from 1pm to 1:05pm.
You can find out more about the covid-19 day of remembrance at https://dayofreflection.campaign.gov.uk/events/
Or to find an event in your area, go to the interactive event map here.
Mobilise - Have your say on the future of the NHS
Surrey campaigner seeks reversal of vote by Surrey Councillors
Surrey campaigner seeks reversal of County Councils decision to include a night time allowance into their charging framework.
Rugby league widow speaks out in support of Unpaid Carers.
Multiple Sclerosis sufferer Nina Parry is campaigning for "Nina's Law"
Multiple Sclerosis sufferer "Nina" is petitioning the Government to recognise "Nina's Law"
Campaigner for carers rights sets up NUCUF
The founder of the NUCUF - Leo Cleary
(read the article here)
Majority of unpaid carers not looking forward to Christmas
New research carried out by Mobilise shows 1 in 4 carers are not looking forward to Christmas
Prime Minister announces review of carers allowance.
Prime Minister announces review of carers allowance.
Story by Frances Mao and Michael Buchanan - BBC News
Surrey County Council announces new support package for carers.
Extra support on offer to Surrey residents
Story by Stuart Maisner - BBC News