Our News Updates

The latest news concerning carers, brought to you by the NUCUF - Championing unpaid carers and campaigning for their rights.

NUCUF Urges Unpaid Carers To Have Their Say

The National Unpaid Carers Union and Forum are urging unpaid carers to have their say.

For the first time, the Department for Work and Pensions (DWP) have asked unpaid carers to input into the Independent Review of Carers Allowance. The review which is due to report its findings in Summer 2025 is asking the following questions:

1. What is the impact of Carers Allowance overpayments on carers and the people they care for?

2. How well do the DWP processes for Carers Allowance Work, are they clearly communicated and easy to follow, are the processes easy to advise people about, and how do the DWP processes make unpaid carers feel they are being treated, and can this be improved?

3. Is the approach to averaging earning clear and consistent, are expenses clearly understood, and can this be improved?

4. How does Carers Allowance work for the self employed, and can this be improved?

5. Does DWP strike the right balance between flexibility and consistency in administering Carers Allowance, and can this be improved?

6. What can best be done to support those who have accrued overpayments?

Anyone can take part in the review, we will collate your answers to the above and will provide them to the review, anyone wishing to take part can before 23:59 11th May 2025.

You can send your input to us by clicking here


Department for Work and Pensions Lets Carers "Slip Through The Cracks"


Story by Patrick Butler - Social Policy Editor
The Guardian

Department previously investigated only 50% of earnings limit alerts, meaning many carers fell into debt.

Ministers have announced an overhaul of the way carer’s allowance overpayments are checked in an attempt to fix the failing system which has left thousands with life-changing debts,fines and criminal records.

In a significant policy change, the Department for Work and Pensions (DWP) has been ordered to hire extra staff to investigate 100% of the carer’s allowance earnings breach alerts it receives and swiftly notify carers if they are at risk of falling into debt.

Last year, the Guardian revealed that for the last six years, the DWP has chosen to investigate just 50% of alerts on cost grounds – even though this has led to huge numbers of carers unknowingly accruing massive overpayments.

Campaigners are optimistic the move could, over time, significantly reduce the numbers of carers falling foul of the system – but warned thousands more will be unfairly hit by overpayments as huge backlogs of alerts are processed over the next few months.


Carers in England and Wales who breach carer’s allowance earnings limits of £196 a week must return the full £83.30 a week benefit payment, a “cliff edge” penalty that means going £1 a week over the limit for one year would result in the claimant being hit with a repayment demand not of £52, but £4,330.

The DWP’s dogged refusal over many years to properly check the real-time alerts of carer’s earnings it gets from HMRC and use the data in timely manner to prevent carers unwittingly running up overpayments has been a central feature of the carer’s allowance scandal, exposed in a series of Guardian articles over the past year.

Critics have accused DWP of in effect creating a lottery in which some carers are alerted to earnings breaches after a few weeks while others are allowed to accrue years of overpayments before being asked to repay large sums, in some cases as high as £20,000, causing widespread financial and emotional distress.

An independent government-commissioned review of the carer’s allowance is expected to report in the summer. The review, which will look at how the overpayment scandal came about and how to fix it, is part of what ministers have promised will be a “new settlement” for carers.


The chief executive of Carers UK, Helen Walker, welcomed the move: “When the alerts target was set at 50%, thousands of carers were missed and experienced large and damaging overpayments, in a situation that could have been largely avoided,” she said.

But she warned that until the new policy took effect, tens of thousands more carers would continue to be hit with overpayments, including an estimated 20,000 at risk when a huge backlog of paper-based alerts related to national insurance credits, which the DWP allowed to build up, is finally tackled.

“As the DWP works to clear the current backlog, the human cost of a system which needed an overhaul years ago will still continue to rise. Sadly, clearing the backlog is likely to result in a further rise in overpayments debts,” said Walker.

The government’s current position, outlined in a letter to charities last week by the social security minister, Sir Stephen Timms, indicated the handling of overpayments would be “business as usual” and there would be no pause on repayment demands, fines, or potential prosecutions for fraud.

The Liberal Democrat leader, Ed Davey, called for carer’s allowance overpayments to be written off, saying it was wrong carers continued to be punished by a system the government admitted was broken. “It is totally unacceptable that more and more carers are being caught up in this scandal, so long after it was exposed,” he said.

A DWP spokesperson said: “We are drafting in extra staff so the backlog of all under- and overpayments are investigated promptly and corrected. We will agree affordable repayment plans and, when issuing debt management notifications, signpost to independent advice services.”

Campaigners have long argued the complexity of carer’s allowance rules meant carers who worked part-time were unaware when they breached weekly earnings limits, often by only a few pounds or pence, and that the DWP should use the earnings data it had at its disposal to warn them in timely fashion so they could make adjustments.

Although the DWP promised MPs six years ago the introduction of electronic earnings alerts from HMRC would eradicate overpayments, it has repeatedly neglected to deploy enough staff to carry out the checks. Overpayments have continued to spiral, with 144,000 carers currently repaying over £250m.

The National Audit Office revealed in December that DWP policy was to investigate half of all alerts on the grounds this was the maximum it needed to process to meet its internal financial savings targets.

Timms said: “Carer’s allowance alerts have been coming in to the department, but many haven’t been processed. In future, we plan to act on all of them. This will be an important step in reducing overpayments.

“We are delivering on the change we promised when elected by drafting in extra staff. Reviewing 100% of alerts will allow us to tackle overpayments when they arise, rather than waiting until carers have built up large debts.


The National Unpaid Carers Union and Forum annual survey is out now.


The NUCUF Carers Survey 2025 is available now.

National Unpaid Carers Union and Forum starts new Carers Survey

The National Unpaid Carers Union and Forum Carers Survey for 2025 is available now by clicking the following link. Survey 2025

Why do we need this information

We collect information together which we supply anonymised to the Department for Work and Pensions and HM Government to help shape the support packages offered by the local authorities.

By completing the survey you can help us to provide an accurate picture of the needs of carers. To encourage participation in the survey, we will be running the survey until Carers Rights Day on the 21st November 2025. 


The National Unpaid Carers Union and Forum welcomes our new Community Partners.


Welcome to our new community partners, Harlow Council and the Harlow Food Bank.

Welcome to our new Community Partners

A big welcome to our new Community partners, Harlow Foodbank in association with the Trussell Trust, and our local authority, Harlow Council.

We will be working together in our campaign for unpaid carers and their fight for financial stability, while continuing to gain support for local community organisations.

In 2024, Harlow's Food Bank assisted over 10,000 people in the community with food vouchers, and to date have assisted close to 1,000 adults and children per month.



The National Unpaid Carers Union And Forum: A Lifeline For Unpaid Carers Across The UK


Crip Life™ and NUCUF collaboration.

The National Unpaid Carers Union And Forum: A Lifeline For Unpaid Carers Across The UK

The National Unpaid Carers Union and Forum (NUCUF) is a groundbreaking initiative aimed at providing a strong, collective voice for unpaid carers across the UK. Founded by Leo Cleary, a passionate advocate for carers’ rights, NUCUF is dedicated to fighting for better support, recognition, and financial security for those who selflessly care for loved ones.

What is NUCUF?
NUCUF is both a trade union and a supportive online forum designed specifically for unpaid carers. It seeks to address the financial struggles, emotional toll, and systemic challenges faced by carers by offering advocacy, guidance, and a platform for collective action.

Through NUCUF, carers can connect, share experiences, and access vital resources to help them navigate their roles more effectively.

Who created NUCUF and why?

Leo Cleary, a 42-year-old carer for his elderly mother-in-law, founded NUCUF after witnessing firsthand the difficulties faced by unpaid carers. His activism began when he launched a petition against the government’s prosecution of carers who exceeded the earnings threshold for Carer’s Allowance. The petition gained over 51,000 supporters, resulting in a £45 per week increase to the earnings limit and a government review of overpayments.

Recognising that carers needed a permanent and organised voice, Leo took the next step by establishing NUCUF. His goal is to build a unified movement that can influence policies and create a lasting impact on the lives of unpaid carers nationwide.

How NUCUF will benefit unpaid carers

NUCUF is designed to provide multiple benefits to unpaid carers, including:

Advocacy and Representation: By working to gain official recognition, NUCUF will ensure that carers’ rights and concerns are heard at the highest levels of government.

Financial Support and Policy Changes: NUCUF aims to push for fair financial support, better allowances, and greater protections for carers.
Emotional and Practical Support: The online forum will serve as a safe space where carers can access advice, share experiences, and find emotional support from a community that understands their struggles.

Collaboration and Networking: NUCUF will work alongside other carers’ organisations to build a nationwide support network, ensuring that unpaid carers have access to the resources they need.
The road ahead for NUCUF

To establish NUCUF as an officially recognised union, Leo Cleary is currently in discussions with the Department for Work and Pensions (DWP) and has written to Prime Minister Keir Starmer. His determination to secure formal recognition is a crucial step in ensuring that carers’ voices are not only heard but also acted upon.

As NUCUF continues to grow, its impact is expected to reshape the landscape for unpaid carers in the UK. With increasing membership and a clear vision for the future, Leo Cleary’s initiative offers a new hope for those who dedicate their lives to caring for others. Through NUCUF, unpaid carers now have a champion fighting for their rights, recognition, and well-being.

Visit NUCUF at www.nucuf.org or email leo@nucuf.com for more information on the NUCUF.

Thank you NUCUF for partnering with Crip Life™ and featuring us on your website. 


The NUCUF welcomes a new community partner.


Action for Family Carers (www.affc.org.uk)

Action for Family Carers joins NUCUF coalition.

A warm welcome to a new community partner.

Action for Family Carers is a Carers Trust Network Partner, having previously been a member of the Princess Royal Trust for Carers which merged with Crossroads nationally to form Carers Trust in 2012, of which they were a Founding Member.

"At Action for Family Carers, we’ve been supporting carers in Essex for decades. We were founded by Carers for Carers and have been making a positive difference to the lives of unpaid family Carers ever since. We’ve got 3 offices right here in Essex and over the years we have built a huge knowledge of our local communities."

To find out more about Action for Family Carers go to https://affc.org.uk/our-history/



The National Unpaid Carers Union and Forum joins forces with Crip Life™ - The online disability magazine.


Crip Life™ Magazine (www.criplife.co.uk)

National Unpaid Carers Union joins forces with Crip Life Magazine.

The National Unpaid Carers Union and Forum has joined forces with Crip Life™ Magazine.

Crip Life™ is an online magazine that champions a community that is often marginalised and stigmatised; the disabled population, that makes up 20% of us. Our aims are to overcome disabling social barriers to allow everyone in this community to live the life they want to.

We are FREE to read anywhere in the world and, therefore, have a truly global presence. Crip Life™ shares empowering stories, advertises accessible and inclusive products and services, and gives the disabled community a voice.

Crip Life™ is the newest & freshest online disability magazine that is dismantling disabling barriers one article at a time.

Launched May 2023, founded by Emma Purcell & Joanna Baker-Rogers, two former colleagues of a previous disability publication who both have personal experiences of living with a disability.

"We are passionate about writing, campaigning & raising awareness of disability. We wanted to continue this. To do so, we created Crip Life™."

You can view the online magazine at www.criplife.co.uk.


Carer campaigns against closure of "vital centre" in Croydon


Carers Support Centre, Croydon

Carer campaigns for Carers Support Centre

A carer from Croydon has started a petition preventing the closure of the Carers Support Centre in Croydon.

Jackie Arnold, started the petition in February requesting Croydon Town Council reconsider the closure which has been a "Vital Centre" to carers in Croydon for the last decade.

Following the advice of their £1million consultants, Croydon Town Council will close the doors permanently on the 14th March 2025.

Jackie said "The Croydon's Carer Centre, managed by the respected Whitgift Foundation, has not only served as a source of vital services but it also houses our beloved Carers Café, a respite room that provides us with a few hours to talk, socialize, share our stories and experiences with other carers - it's more than just a café for us."

"Time and again, the Centre has proven its worth and value. It's deeply concerning that its future hangs in the balance without any consultation with those it directly assists, all in an effort by the Croydon Council to save costs. I urge the Council to reconsider this decision."


NUCUF to host Harlow's first Covid-19 Day of Reflection Event.


The first National Covid-19 Day of Reflection to take place on March 9th, 2025.

NUCUF to host Harlow's first Covid-19 Day of Reflection Event.

Sunday 9th March 2025, will see regions across the UK take part in a simultaneous series of events to commemorate the loved ones we lost during the covid-19 pandemic.

The first National day of remembrance to mark the 5th anniversary of the global outbreak that claimed the lives of over 7million people worldwide and continues to affect the lives of those who survived the virus.

Currently there are still over 700million cases of the virus around the world, this day of events is to remember those we lost, support those still effected by the virus and share stories of those we wish to remember.

Harlow's event will take place at the Civic Centre, The Water Gardens, College Square, HARLOW, CM20 1WG.

Meeting from 12pm at the Civic Centre, we will hold a period of silent reflection from 1pm to 1:05pm.

You can find out more about the covid-19 day of remembrance at https://dayofreflection.campaign.gov.uk/events/

Or to find an event in your area, go to the interactive event map here.


Mobilise - Have your say on the future of the NHS


Have your say on the future of the NHS 


Have your say on the future of the NHS 💙
The government is developing a 10-year Plan for the NHS, and they want to hear from us. This is a chance to share our experiences, ideas, and priorities to help shape the future of healthcare in England.
Mobilise will be gathering responses from our community to share with the NHS - and I’d love for you to get involved. I appreciate there isn’t much time in our schedules, so here are three options depending on how involved you want to get.
➡️ If we can spare five minute then take a look at the proposed changes (known as the three shifts) then share your thoughts here.
➡️ If we only have half an hour we can fill out the NHS survey.
➡️ If we're keen to get really involved join our live workshop on the 12th of February at 12 PM where we’ll discuss our thoughts on the proposed changes.
 📣 By sharing our experiences we can help others to understand how loneliness might affect carers’ lives. Helping to raise awareness, shape support services, and make sure our voices are heard. 🙏


Surrey campaigner seeks reversal of vote by Surrey Councillors


Surrey campaigner seeks reversal of County Councils decision to include a night time allowance into their charging framework.

Campaigner seeks reversal of vote by Surrey councillors

A carer from Carshalton, Surrey has started a petition to reverse a decision made by Surrey councillors.

Julie Blunden, who represents other carers in the Surrey area, is campaigning to reverse the decision to include a night care allowance into their current charging framework. The move which will see disabled people and their carers being charged an additional £1785 per year for care services in the county was brought in despite widespread opposition.

Julie said " It came as no great surprise to those who took the time and trouble to contribute to the consultation process, only to find their views [was] in no way represented in the bland document produced at the end of it. This petition, will however continue, as we intend to mount a legal challenge. In the interim, as it has exceeded the 1500 signatories required for a full council debate.  I have submitted a request to bring the petition to their next meeting which will be held on the 27th January".

Julie has set up a "Go Fund Me" page to raise vital funds to be able to put the case to solicitors to seek legal representation, anyone wishing to donate to the campaign can by clicking the following link: donate 

Julie went on to say "On top of the removal of the winter fuel allowance for many, this really feels like a kick in the gut for carers, since it clearly indicates the care we give (both day or night) literally does not count. If this charging structure is bought in, carers will have to try and find the extra money or give up their care services; increasing the likelihood of carer breakdown and an increased demand for residential care. This will cost the council far more".

You can find out more about Julies' petition by clicking here.





Rugby league widow speaks out in support of Unpaid Carers.


Widow of rugby league legend says "without carers this country would't cope"

The widow of Leeds Rhinos rugby league legend Rob Burrow has highlighted the "incredible work" she said was being done every day by unpaid carers.
Lindsey Burrow looked after her husband from when he was diagnosed with motor neurone disease (MND) in 2019 until his death aged 41 in June. Ms Burrow said without the commitment shown by unpaid carers to the people they looked after, the country "would not cope".
Helen Walker, chief executive of Carers UK, said huge numbers of carers were "picking up the slack" for issues in adult social care. A government spokesperson said changes were being made to "improve adult social care and support carers".
'Working and caring'
Ms Burrow said the work unpaid carers did on a daily basis was "just incredible". "I think in the UK there are over 10 million carers - and two million of those are actually working," she said.
"So, they are juggling working and caring responsibilities as well, and I just think they do an amazing job."
It was important to champion the work unpaid carers did and "recognise and reward them", Ms Burrow said.
"Without them our country just wouldn't cope."

Lindsey Burrow says caring for Rob was a "privilege", though it could also be lonely. Ms Burrow's comments came as the government announced steps and investment to address problems in adult social care. It has also announced an independent commission into adult social care as part of long-term reforms to create a National Care Service, though that has faced criticism as it was not expected to report back until 2028. Ms Walker, from Carers UK, welcomed the government's announcement, but said there were "anxieties" about the timescale of any reforms.


"There's a crisis now and it has a knock-on effect on unpaid carers, so unpaid carers take on more responsibilities because of the lack of social care," she said. Unpaid carers were "picking up the slack" for problems with the adult social care system, Ms Walker said. Carer's Allowance, which people may be eligible for if they spend at least 35 hours a week looking after someone with an illness or disability, was the lowest benefit of its type, she added.
"If you have to give up work in order to care, you are only entitled to £81.90 a week and that really is not enough to live on," Ms Walker said. "We need more support for carers and a fundamental review of carer's allowance."


A government spokesperson said: "We are making changes to improve adult social care and support carers, including modernising the sector and appointing Baroness Louise Casey as chair of an independent commission."
They said the carer's allowance earning threshold would be increased to give "unpaid carers the opportunity to earn more and still receive the government support they deserve". The large stadium screen showing a tribute to former Leeds Rhinos player Rob Burrow during the Betfred Challenge Cup final at Wembley Stadium, London.

Rob Burrow, who was diagnosed with MND in 2019, died in June at the age of 41, his MND diagnosis came two years after he retired from playing. His 17-year career with Leeds Rhinos and Great Britain included eight Super League Grand Final wins, three World Club Challenges and two Challenge Cups.
Ms Burrow said she was grateful to have been able to care for her husband.
"It is a really positive and really rewarding to job to do, and I was very honoured I got the privilege of looking after Rob," she said. However, she added that the reality of being a carer was that it could often be a lonely experience.
"It can be isolating at times. People don't know who to turn to and the system doesn't always work for everybody," Ms Burrow said.
'Make memories'
It had been a "tough few months" since her husband's death, she added. "But I know Rob would want us to be happy and would want the children to be happy. "This year is going to be increasingly difficult, the first year without Rob.
"But he showed us the way that life is for living, and we owe it to Rob to continue to be happy and to make those memories."


Multiple Sclerosis sufferer Nina Parry is campaigning for "Nina's Law" 


Multiple Sclerosis sufferer "Nina" is petitioning the Government to recognise "Nina's Law"

MS sufferer campaigns for Nina's Law

A Multiple Sclerosis sufferer is campaigning for the implementation of Nina's Law.

It is estimated that there are more than 150,000 people who suffer with Multiple Sclerosis in the United Kingdom, with around 135 new diagnoses each week for the debilitating disease.

On Boxing Day 2004, Nina was witness to the trauma of the Tsunami which struck Inodnesia while holidaying in Thailand, she escaped with her life only to be struck with Post Traumatic Stress Disorder (PTSD) causing her to have nightmares reliving the disaster. Nina and the MS Society believe that this has triggered her Primary Progressive MS.

Nina said "MS is a chronic and debilitating autoimmune disease and I am now classed as tetraplegic, reliant on near ‘round-the-clock’ carers and a fully electric wheelchair to move around the house. 
My campaign to bring about ‘Nina’s Law’ came after waking up one night from a terrible dream where I ended up in hospital without my invaluable carers, who, along with my PA, I couldn’t live without".

Remarkably, it’s estimated that around one in eight hospitals currently don’t allow external carers to operate within their buildings, either because of their own policy or because of failures to agree terms with care companies.

Nina went on to say "The NHS doesn’t have the resources or specialist training for nurses to provide the same level of personalised care when patients with severe MS or complex needs are admitted to hospital. Patients’ lives and wellbeing are potentially put at risk as a result. Sadly, there are many people in the same position as me, suffering from a range of conditions, some of which have even greater needs than me".


Nina’s Law’ aims at ensuring patients like me receive continued healthcare by their own carers, whether they be family members or professionals provided by care companies, within all UK hospitals.
The responsibility also lies with the care companies allowing this to happen, as many do not. Some care companies do allow this, but purely for familiarity and so the vital routines get stopped again.
This common sense solution has many barriers surrounded by red tape and bureaucracy. Why? It just makes sense. People affected by this have a basic human right to be cared for wherever they are.

You can watch the Channel 5 interview with Nina here.


Campaigner for carers rights sets up NUCUF


The founder of the NUCUF - Leo Cleary
(read the article here)

Campaigner sets up union for carers

A campaigner who fought the UK Government over the prosecution of carers is setting up a union and online forum. Leo Cleary plans to set up the National Unpaid Carers Union and Forum. 

A campaigner who fought the government over prosecutions of carers is setting up a new union and online forum.  Leo Cleary is setting up a trade union for carers after campaigning against government prosecutions of people who exceeded the earnings threshold for Carer’s Allowance.
Cleary, 42, who cares for his elderly mother-in-law, started a petition against Government prosecutions of carers for exceeding the earnings limit for Carer’s Allowance.


Big support
The petition attracted 51,000 supporters on change.org. After that, the Government announced plans to lift the earnings limit on Carer’s Allowance by £45 per week to £196 from April.  The Government has also launched a review of Carer’s Allowance overpayments. The campaigner said the forum would offer carers free advice and guidance and “be a shoulder to cry on, or just an ear to listen”. 


‘Next ideological step’
Cleary, from Harlow, Essex, set up the union after his June petition attracted 40,000 signatures in two days.  As well as campaigning online, Cleary says he produced several leaflets and delivered them to more than 2,000 homes. In an email, he wrote that starting the union was the “next ideological step”. According to Cleary, the union already has 75 members, and the number is rising daily. 


Seeking recognition
The campaigner says he is ready to work alongside other carers’ groups “to build a network of support and advice that blankets the whole of the UK”.  To set up the union, Cleary must seek recognition from the organisation he is opposing – the Department for Work and Pensions (DWP). He has now written to Prime Minister Keir Starmer to get recognition for the union. 
In a statement, a spokesperson for the DWP said it had launched a review of overpayments so carers do not face “difficulties in the future”.


Majority of unpaid carers not looking forward to Christmas


New research carried out by Mobilise shows 1 in 4 carers are not looking forward to Christmas

Majority of unpaid carers not looking forward to Christmas

Over 1 in 4 carers say being able to take a short break from their caring responsibilities would help them find Christmas more enjoyable .

 New research has revealed that the vast majority of unpaid carers aren’t looking forward to Christmas this year.  The study – carried out by Mobilise, an online community for unpaid carers – surveyed a group of unpaid carers to find out how they are feeling about Christmas, and what would help them find the festive season more enjoyable.


When asked how they were feeling about Christmas this year, the survey found:
61% of unpaid carers aren’t looking forward to this Christmas (42% said they aren’t looking forward to the holidays much or at all, and a further 19% feel indifferent)
26% said they are only looking forward to this festive season ‘a little’
Just 13% of unpaid carers said they were looking forward to Christmas this year a lot

Jan Simonsen, a carer from Gateshead, added: “I care for my partner, whose condition comes with good days and bad days.
“This can make it difficult to make plans, especially around Christmas, as we often have to make last minute decisions based on what feels manageable on the day.
“We also have to factor in lots of extra logistics if we want to travel to see our children and grandchildren, or join in socialising with friends over the Christmas period.
“Being a carer is a labour of love. Unfortunately, we aren’t always valued or shown the support we deserve, and this hits even harder at this time of the year, when there are so many extra expenses to contend with. Still, we take each day as it comes. Christmas day this year will be no different.”

There are an estimated 10.6 million people who are looking after a loved one or family member across the UK. During holidays such as Christmas, some regular support services – such as clubs or drop-in centres – may not be available, and friends, family and neighbours may not be around to help out.
This can lead to greater feelings of isolation and overwhelm at a particularly difficult point of the year.
According to the research, 29% of unpaid carers said being able to take a short break from their caring responsibilities would help them find Christmas more enjoyable, with 1 in 5 saying more financial support would be at the top of their list.

Suzanne Bourne, head of carer support at Mobilise, comments: “Christmas can be a really tricky time for lots of people, but it can be especially hard for unpaid carers.
“You don’t get to take a holiday from caring responsibilities just because it’s Christmas. And for all sorts of reasons there can be even less support on offer than usual.
“It’s vital that carers remember that they’re not alone and that there are people who will listen if you need someone to talk to.
“Likewise, those without caring responsibilities should remember to reach out to people they know might be struggling this Christmas and see if they can help in any way. Sometimes just a cup of tea and a friendly chat can make all the difference.”
The Mobilise digital support services are available throughout the Christmas period, including an online “Christmas Cuppa” being held on Christmas day which is free to join for all unpaid carers. 


Prime Minister announces review of carers allowance.


Prime Minister announces review of carers allowance.
Story by Frances Mao and Michael Buchanan - BBC News

Prime Minister announces review of carers allowance.

The government has announced an independent review into Carer's Allowance overpayments, after families were forced to pay back thousands of pounds which pushed many into debt and financial distress. Earlier this year it was revealed the government was seeking to recover money from more than 134,000 carers in the UK. 
Some have told the BBC that the sudden demand for repayment of sometimes thousands of pounds put them under great financial strain, while it pushed others to quit their jobs.
The review will focus on how and why the overpayments were made, and what can be done now to help support affected carers.  It is unclear if families still owing the government need to continue with repayments while the inquiry is underway. The Liberal Democrats have called for the Labour government to write off the majority of the repayments. 
Prime Minister Sir Keir Starmer welcomed the review saying it would look at "the circumstances of the overpayments to see what went wrong and therefore what can be done to put it right".  But he was asked by MPs at Prime Minister's Questions why it had taken so long for a review to be announced. 
Carers have said they were not aware they had been wrongly overpaid the benefit because many did not realise they had exceeded the earning limit for it - which is capped at £151 a week, or just over 13 hours work on the minimum wage.
The government gives an £81.90 allowance for people who care for someone for more than 35 hours a week. But anyone who earns even a few pence more than £151 a week from other work is required to repay all of their Carer's Allowance.  Critics have called that a "cliff edge" - and said many carers found themselves in unexpected situations where for example, working an extra shift or receiving a bonus, had cut them off completely from the benefit. The earnings threshold has previously been described by critics as very low. 
Emma Martin, from Devon, is a full-time carer for daughter Mia, 27, who has autism, epilepsy and learning disabilities.  A few years ago, she received a demand from the Department for Work and Pensions (DWP) for £1,500 after they told her she had been overpaid Carer’s Allowance while working part-time. 
The 53-year-old had to borrow the money from family to pay it back.  "We get paid less than the unemployed," she says. "There’s no way that the state is going to pay the thousands of pounds a week it would cost to pay for my daughter’s care while I worked full-time. "So they get me for £80 a week and demand that I don’t earn a penny over £151 a week at the same time. "We’re shafted every possible way." 
Carers Trust chief executive Kirsty McHugh said the review was "hugely welcome", adding "too many people have had their lives ruined by being pursued for huge sums of money simply because they made an honest mistake".
She also expressed how she hoped the government might review and reform the "archaic and unfair" Carer’s Allowance system as a whole.
Lib Dem leader Sir Ed Davey, who is a carer for his disabled son and cared for his mother when he was young, said the strict income threshold of £151 had led to many carers wanting to give up working or caring in some cases. "The DWP shouldn't be persecuting tens of thousands of carers whose overpayments were caused by the crazy cliff edge in the current carer's allowance system, and the DWP's own incompetence in failing to notify them of overpayment immediately", he said. 
The DWP failed to notify some recipients they had been overpaid for years and when they were asked for repayment retrospectively, the debt owed was in the tens of thousands of pounds.
Work and Pensions Secretary Liz Kendall said the department was “determined to put this right” with the inquiry - which will be chaired by Liz Sayce, the former chief executive of Disability Rights UK - a leading charity representing the rights of disabled people.
The review will look at "operational changes" to minimise the risk of overpayments in the future and also examine how people with overpayments can be supported.
A report released earlier this year surveying 1,000 carers made the estimate that 3% had to make repayments after changes in circumstances meant that they received the benefit in error, but the researchers said this may be an underestimate.  Official statistics show that 1,377,000 people currently claim Carer's Allowance in Great Britain. 
The same report released in May found the DWP had known since 2021 that overpayment of Carer's Allowance has left some people in financial difficulty.


Surrey County Council announces new support package for carers.


Extra support on offer to Surrey residents
Story by Stuart Maisner - BBC News

Surrey County Council announces new support package for carers.

19 November 2024
Additional support is being rolled out for tens of thousands of unpaid carers living in Surrey.
At least 90,000 people in the county provide unpaid care for friends, family members or neighbours, according to Surrey County Council (SCC).Through a new initiative, carers will gain access to a wide range of free on-demand services, aimed at "supporting individuals with the day-to-day realities of caring".
A SCC spokesperson said It would provide a "complementary layer of added support that can be accessed remotely via an online hub".

The new services carers will be able to access include:
On online peer community of thousands of fellow carers from across the UK
Self-service tools outlining the support which carers may be entitled to
Tailor-made support guides
Information on carers’ rights and relevant social care law

Martin, a carer from Surrey who looks after their partner, said: "It’s great to know that there is a wide community of carers who can, without judgement, share their honest views and experiences on such a wide range of topics."It’s reassuring to know that there are like-minded people out there and that we’re not alone." Sinead Mooney, SCC cabinet member for adult social care, said: “Carers play a crucial role in families and in our local communities by supporting people who would otherwise struggle to cope alone, which is why it’s so important for us to make sure carers themselves are cared for."

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